Our family had a great weekend at the 2017 Family Gathering in San Francisco. Thank you to everyone at the IFOPA for putting together such a remarkable event.
FOP is a hard condition to live with, but being a part of this community of positive people, dedicated scientists and doctors, and generous supporters is incredibly heartwarming.
We were so impressed with the conference, staff and facility. We truly did connect, learn and grow. And most importantly, Daniel made new friends with other kids who get it, because they are living with FOP, too!
FOP is a hard condition to live with, but being a part of this community of positive people, dedicated scientists and doctors, and generous supporters is incredibly heartwarming.
We were so impressed with the conference, staff and facility. We truly did connect, learn and grow. And most importantly, Daniel made new friends with other kids who get it, because they are living with FOP, too!
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