Tomorrow is International Rare Disease Day, and if you are anything like I was, this kind of day just never got on my radar. Since joining the 'rare disease club' with my son in 2012, I've been shocked to learn how many millions of people live with thousands of different 'rare' diseases that most often have little or no awareness, medical research or funding. This day is meant to give those 'rare' people a day of hope that their condition deserves attention, awareness for earlier and more accurate diagnosis, and hopefully one day soon a cure.
Now my sweet amazing son is facing such a unique challenge, I have met many other families in similar situations. Over and over, I've been awed by the stories of perseverance, courage, faith and love from both the patient and their families. Not that I'd wish this on anyone, but there's some pretty miraculous stuff happening here! So please take a moment to appreciate your health and say a prayer of healing for those living with a rare disease.
Thank you beautiful people!!
Now my sweet amazing son is facing such a unique challenge, I have met many other families in similar situations. Over and over, I've been awed by the stories of perseverance, courage, faith and love from both the patient and their families. Not that I'd wish this on anyone, but there's some pretty miraculous stuff happening here! So please take a moment to appreciate your health and say a prayer of healing for those living with a rare disease.
Thank you beautiful people!!
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