On this rarest day of the year, Feb 29, the Williams family represented FOP at Rare Disease Day at Houston's inaugural event at The Health Museum. Great talking to geneticists, patients and parents all focused on awareness, support, treatments and cures!
The National Organization for Rare Disorders (NORD) observed Rare Disease Day in Houston on Monday, Feb. 29. This educational experience is a joint effort by Texas Children's Hospital and Baylor College of Medicine to showcase 20 rare disease organizations and provide information and resources to families in need.
Go to www.ifopa.org for more information on FOP.
The National Organization for Rare Disorders (NORD) observed Rare Disease Day in Houston on Monday, Feb. 29. This educational experience is a joint effort by Texas Children's Hospital and Baylor College of Medicine to showcase 20 rare disease organizations and provide information and resources to families in need.
Go to www.ifopa.org for more information on FOP.
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