I'll be hosting a booth for FOP at Houston's 3rd annual Rare Disease Day this Saturday, February 24th at the Health Museum (1515 Herman Drive) 9a-1p. Join us to visit with booths from over 30 rare disease organizations to raise awareness among policymakers and the public about rare diseases and their impact on patients’ lives. It is also meant to give our 'rare' people a day of hope that their condition deserves attention, awareness for earlier and more accurate diagnosis, and hopefully one day soon a cure. We're all praying for research, treatments, support, funding and compassion!

The Health Museum is partnering with us and it is FREE to enter the Biorhythm exhibition.

#ShowYourRare #cureFOP
International FOP Association (IFOPA) Daniel's Den


See you there!
Tiffanie

The Bee-lieve in a Cure Honey has literally flown off the shelves! Thank you to everyone who got a few honey hearts to support Daniel and the IFOPA! Together, we raised over $6,000 to support research and take one step closer to a cure. Look for us again next Valentine's Day...we'll be back with more delicious, raw, local honey for your sweethearts!

We've been overwhelmed with the enthusiasm and generosity from our friends. Thank you everyone who helped...it really means so much to us to be surrounded by so much love. You guys are simply the sweetest!

Thank you to PICNIC, Pinkerton's Barbecue and Revolucion Coffee + Juice for helping us out.