3rd Annual Rare Disease Day this Saturday!

2/20/2018

I'll be hosting a booth for FOP at Houston's 3rd annual Rare Disease Day this Saturday, February 24th at the Health Museum (1515 Herman Drive) 9a-1p. Join us to visit with booths from over 30 rare disease organizations to raise awareness among policymakers and the public about rare diseases and their impact on patients’ lives. It is also meant to give our 'rare' people a day of hope that their condition deserves attention, awareness for earlier and more accurate diagnosis, and hopefully one day soon a cure. We're all praying for research, treatments, support, funding and compassion!

The Health Museum is partnering with us and it is FREE to enter the Biorhythm exhibition.

#ShowYourRare #cureFOP
International FOP Association (IFOPA) Daniel's Den

See you there!
Tiffanie

8 Comments

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3/6/2018 12:52:12 pm

Everyone should attend these events at least once a year. They need to be updated on how to prevent diseases. The risk factors keep changing with every research. Environment is a huge factor. This is why we should be aware of everything that's happening in the city. What we don't know can hurt us and what we know can save us from unnecessary death. It's always better to prevent than to cure and we can only do these if we are aware of what is happening and what should we avoid.

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4/3/2018 08:55:34 pm

If people are aware of diseases, there should be more reasons for them to be aware how to prevent them. There has been a lot of talk going on lately and it's about time we arm ourselves with all the information we can get. The good news is everything we need to keep ourselves healthy is available in the market and we don't need to do anything else invasive or drastic to improve our condition. The body has a natural ability to heal itself and it's doing a great job even if we try to wear it out. So why should we keep doing this? Why not just help your body do it's job by trying to stay healthy.

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4/4/2018 07:12:07 pm

We all should joing hands together to prevent from this disease.

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4/5/2018 07:10:58 pm

If we raise awareness about these diseases, more people will aware of it and take precautions regarding them.

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6/20/2018 06:54:24 am

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3rd Annual Rare Disease Day this Saturday!

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